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May 2008

Saturday 24 May 2008

Too Many Tears PDF Print Write e-mail
Written by Jennifer
Saturday, 24 May 2008 15:50

Today I was surfing around the Internet trying to figure out what is wrong with me. Not really worth getting into but I have been sick for a while now and have been on medication for about a week and I am only feeling worse...during my search I found myself somewhere I had not allowed myself to go in some time. The Leukemia & Lymphoma Society BBS I feel awful that I distance myself from this place. I feel as if I am turning my back on the world I wish I had never found. It is just so hard to see all the children that are suffering, battling and losing their fights with cancer. Today I found a link to a petition that I am asking all of you that read this to sign. Please take a moment and do this for the kids that are fighting, the kids that have lost and for the kids who will sadly have to face this in the future. Cure Childhood Cancer - Awareness and Research

I am grateful that Jacey has been one of the chosen few that has thus far beaten the odds. The odds were so stacked against her but she continues to beat them. You can always see the look of surprise when the doctors and nurses that cared for her see her walking down the hall at the hospital. I will never forget the day that palliative care showed up in Jacey's hospital room. Jacey was lying there hooked up to the ventilator and I had not seen her beautiful eyes or heard her loving voice for weeks. I was so angry that I felt they were giving up on her. Clearly Jacey showed them but it brings me so many tears when I think of the children that were in the hospital at the same time as she was and that are no long with us. There is no way to explain the hopeless and helpless feeling that cancer brings into the heart of a parent. I can on imagine the unbearable pain that the parents must feel when their child losses the battle.

Once again this year we are doing the LIGHT THE NIGHT WALK. We do this walk every year in hopes to raise awareness and funds for the leukemia society. I do it in the hope that maybe just maybe a child can be saved and maybe their treatment won't leave them with the life long problems that Jacey now has. I am begging and pleading that you join us in this effort. You can join our team and help raise funds by doing the walk with us or you can make a donation. Please know that even a donation of $1 can make difference! Click here to learn more about our walk or Click here to make a donation.


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Thursday 01 May 2008

Party Ideas PDF Print Write e-mail
Written by Jennifer
Thursday, 01 May 2008 12:46

Talks about Jacey's big five year Remission Party has been a big subject in our house lately. Yes we are aware that it is still 3 yrs away but it is nice to be looking forward instead of looking over our shoulders so much. Please stop by the forum and share your thoughts about the party with us.

It has been so long since I have updated and I am sorry. Jacey has been doing really well health wise and it almost scares me to say that out loud. The medication they gave her to keep the fluid out of her ears seems to be working very very well. I have yet to schedule her ear surgery and think I have decided to hold off on it until after summer. Now I just need her ears to get on board with that idea.

Justin has come down with some awful virus & bacteria infection. The doctor said his throat is as red as a fire truck. He is on meds now and has started to feel a lot better. I am really hoping he doesn't share this with the rest of us.

I have made it through both of the kids IEP meetings and I am glad they are both done for another year. Jacey may of may not be done with speech but that is up in the air. Justin's IEP is very short now and that is a good thing.

I am kind of scatter brained today and can't think of much to add. Ohh we are starting our Light the Night stuff. I will get the page back up on the site soon!

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